Even after 20 days in the hospital...
This is where I find my strength.
7.23.2012
Allow me to introduce you...
Sweet Emmaline
This beautiful girl was born on April 5th 2012 at 3:07PM. She weighed 7 pounds and 8 ounces and was 20.5 inches long.
She is the most incredible little baby and we can't even begin to explain what a blessing she is to us.
This sweet little angel also has Hirschspung's Disease.
She is the most incredible little baby and we can't even begin to explain what a blessing she is to us.
This sweet little angel also has Hirschspung's Disease.
Hirschsprung's (HERSH-sproongz) (HD) disease is a condition that affects the intestines and causes problems with passing stool. HD is present when a baby is born (congenital) and results from missing nerve cells in the muscles of a portion of the baby's colon (in rare cases, the small intestines is also affected).
Emmaline's first weeks with us were so scary. She had several episodes of vomiting and many trips to the emergency room.
We were given the "this is all normal newborn stuff" and "sounds like reflux" responses. (Let me be clear...I love our pediatrician and I don't hold him responsible for the weeks of not knowing.) We were certain that it was something more.
April 17th was the scariest night of my life. Emmaline had started vomiting and we were told again to wait it out and give her pedialyte but this time the vomiting didn't stop. She eventually vomited a brown substance that would send us in a panic to the local ER.
I thought we were going to lose her.
I really did.
I had never seen anything like that before and I was terrified.
We were finally sent to Texas Children's Hospital in Houston where we met Dr.Brandt. Her and her team of eager residents and fellows treated and diagnosed Emmaline with HD.
In this space we will share all about Sweet Emmaline and all that she has and will go through. Not only with to her illness but in all aspects of her life! We look forward to sharing her with all of you and maybe even finding other families with children who have Hirschsprung's.
April 17th was the scariest night of my life. Emmaline had started vomiting and we were told again to wait it out and give her pedialyte but this time the vomiting didn't stop. She eventually vomited a brown substance that would send us in a panic to the local ER.
I thought we were going to lose her.
I really did.
I had never seen anything like that before and I was terrified.
We were finally sent to Texas Children's Hospital in Houston where we met Dr.Brandt. Her and her team of eager residents and fellows treated and diagnosed Emmaline with HD.
In this space we will share all about Sweet Emmaline and all that she has and will go through. Not only with to her illness but in all aspects of her life! We look forward to sharing her with all of you and maybe even finding other families with children who have Hirschsprung's.
Subscribe to:
Posts (Atom)
